Dan The Ehlers Danlos Syndrome Monster

Roddy The Scleroderma Monster
February 6, 2020
Snore The Fatigue Monster
February 6, 2020

Hey there! I’m Ehlerdanlosaurus, but please call me Dan. I represent Ehlers Danlos Syndrome. I wish everything could be zebra striped like me. 🦓 Rocky (Chronic Kidney Stone Monster), Snore (Fatigue Monster) and Missy (Misdiagnosis Monster) are my three best friends. I wear braces on my legs because my joints dislocate easily 😲 as a result of my EDS.

There are 13 types of Ehlers Danslos Syndrome and each type is a distinct condition caused by a different gene mutation. The hypermobility type is the most common, it’s the one that I have.

Even though my joints dislocate so easily, I love to dance 🕺. It gives me a sense of freedom and makes me happy😊️.

In short this is what describes me:

Name: Ehlersdanlosaurus

Nickname: Dan

Represents: Ehlers Danlos Syndrome

Favorite Colors: Black and White

Superpower: Can dislocate and relocate his joints by himself

Prone to: Loose skin, hypermobility, flexibility

 

Merch

Want a little Chargieville love in your own home? That’s possible.