Dan the Ehlers Danlos Syndrome monster

Roddy the Scleroderma monster
February 6, 2020
Snore the Fatigue monster
February 6, 2020

Hey there! I’m Ehlerdanlosaurus, but please call me Dan. I live with Ehlers Danlos Syndrome. I wish everything could be zebra 🦓 striped like me. Rocky (Chronic Kidney Stone monster), Snore (Fatigue monster) and Missy (Misdiagnosis monster) are my three best friends. I wear braces on my legs because my joints dislocate easily as a result of my EDS.

There are 13 types of Ehlers Danslos Syndrome and each type is a distinct condition caused by a different gene mutation. The hypermobility type is the most common, it’s the one that I have.

Even though my joints dislocate so easily, I love to dance.🕺 It gives me a sense of freedom and makes me happy. 😊

In short this is what describes me:

Name: Ehlersdanlosaurus

Nickname: Dan

Represents: Ehlers Danlos Syndrome

Favorite Colors: Black and White

Superpower: Can dislocate and relocate his joints by himself

Prone to: Loose skin, hypermobility, flexibility



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